I’ve always loved Christmas time. All the colorful lights, decorations, the spirit in the air, the joy on children’s faces, the anxiety, the….wait, what? That’s new!
Every kid gets excited for Christmas to come. Usually for the wrong reasons (presents), but we still teach them what it is all about. This year was no different for Asher, but what we experienced this Christmas had us all feeling a bit of Christmas anxiety.
We had noticed over the few months before that Asher was becoming increasingly fidgety…couldn’t hold still, couldn’t control himself, couldn’t focus on anything. Worst of all, he was waking up earlier and earlier (like between 4 and 5 am) and not getting enough sleep. We just wrote it off as his typical overexcitabilities and that he was just antsy because we were stuck inside because of colder weather.
Once we started getting closer to Christmas, it started getting worse. He was becoming increasingly anxious about Christmas, Santa, and if he was on the nice list or not (there had been some threats because of his uncontrollable behavior). Then on the evening of December 21st as he was eating dinner he told me his chicken was making his tummy hurt. I told him he could stop eating it and we didn’t hear anything more of it that night. The next morning though, he told me it hurt again. We chalked it up as anxiety for Christmas and moved on. It hurt off and on throughout the day.
That night, as he was trying to fall asleep, we noticed he could not lay still. Like absolutely impossible. He was on his belly, he was on his back, he was on his knees with his head down, he was kicking his feet, he was on his side, he was on his other side. He could not get comfortable. It was very concerning and stressful to watch him. Finally, all at once he settled and went to sleep.
The next day was Sunday the 23rd and we were expected to be at Christmas with my Dad’s side of the family in Martinsville. Asher woke up and said his tummy was still hurting (ok…day 3, this is odd). We suggested that maybe he was just hungry from not eating much the day before so Brandon took him downstairs to give him some breakfast. After 1 bite, he was in the restroom vomiting. We began to talk about making plans with my parents to take our gifts down for us and collect the ones we would be receiving to bring to us later. However, 3 hours passed and he never vomited again so we said it was probably just anxiety (again) and went ahead and went down there. No more vomit the rest of the day and he acted like he felt just fine, but told us it still hurt “a little bit.” I would ask him to describe what it felt like to try to understand what he was feeling. He would always tell me it was an actual pain, not a sick feeling. I decided that maybe he was indeed experiencing anxiety about Christmas and once Christmas was over it would go away. Or maybe that he had pulled/injured an abdominal muscle in taekwondo or something.
Christmas Eve went rather well. No major complaints, just that it hurt “a little, but not enough to bother me.” However, that night as we prepared for Santa to visit his pain came back full force and he had another rough time settling down to go to sleep. I couldn’t wait for Christmas to come so he could relax and we could be done with this.
Christmas Day came and Santa had come! He told us he was feeling better. (Yes!) All day he played and acted ok. He went to bed that night and slept until about midnight. Then the worst of it happened. I hadn’t managed to get to sleep yet and he was awake, fidgety, tossing and turning like before, sitting up, laying back down, etc. Finally I went in and laid in his bed with him, trying to calm him down. He was just out of it. Saying strange things and acting like it was the middle of the day. About an hour passed and I finally got him to sleep…or so I thought. He was awake again shortly after and doing the same thing as before. Brandon finally went in there and tried to get him to sleep a couple times until he eventually ended up getting up to vomit again. He was still acting strange too so, around 3am, I demanded that we take him to the ER. I was worried about his appendix.
At the ER they got him in pretty quickly. After a physical exam and testing for a hernia, they immediately suggested a strep test which I thought was odd because he wasn’t complaining about his throat at all and didn’t have a fever. The strep test made him gag and vomit again so then they suggested blood work and urine sample to test for various things like early onset diabetes, infection anywhere, and the urine was obviously to test for a UTI. Everything checked out ok there, so they ordered an ultrasound to look at his appendix and look for any other issues that they could find. Everything checked out ok and he was sent home with anti nausea medicine and orders to come back if he got worse.
For 10 days, I gave him the anti-nausea medicine only at night to help him sleep and to have no more vomit sessions. I also gave him Tylenol to help with any pain. He did sleep better, but not great (still waking up super early and coming in our room to “snuggle” despite his fidgets) and despite the medicine he was telling me his tummy still hurt a little bit. We were about 2 weeks into this and still no relief!
A month went by and he was still telling me that his tummy hurt a little bit, but not enough to bother him. Finally one day at the end of January, he came to me telling me his belly was hurting more and it was really bothering him. I made a post on Facebook saying how it had been a month and we needed to get to the bottom of this. A friend suggested that this was how her son (and herself) gets when he has too much gluten. A lightbulb clicked. He had been eating a lot of gluten. He had recently asked if he could switch to bagels for breakfast instead of cereal. He eats PB&J sandwiches for lunch with some type of chip or Ritz crackers. His go-to snacks were Ritz crackers, graham crackers, and Oreos. And for dinner, he ate things like PB&J, spaghetti, sloppy joes, etc. Lots of gluten in there. I decided to start trying to minimize the gluten in his diet.
We are now about 2 weeks in since going (mostly) gluten free and his tummy pain has vanished…unless he has something with gluten in it. His anxious fidgeting is gone. He is FINALLY starting to act like himself again. He’s losing the dark circles under his eyes because immediately he started sleeping better, sleeping until at least 6:30 every morning, but most of the time until 6:50-7:00.
But most of all, he is focusing better than ever on his school work. All week he has finished his school work in a half hour or less. And got at least 90% correct. No more careless mistakes, no more rushing through just to get done. It has been a long time since I have seen him read a math problem and immediately get to work on solving it. It’s nuts! The other night he read a couple chapters in his book rather quickly so Brandon quizzed him on it to make sure he actually read. He answered his questions correctly! He was able to focus on his reading.
He has had the worst eczema all over his legs and bottom. Concerning eczema that I was considering a dermatologist for. That is clearing up. It’s not gone yet, because I read that it takes time, but it certainly looks a lot better.
I’m not sure if he actually has a gluten allergy or sensitivity, but I do know that I am seeing almost immediate benefits to him for going gluten-free. He still will not give up his Friday morning donut date with Mommy, so this evening he felt his tummy pain a little bit and for the first time in forever (I know you just sang the song from “Frozen” in your head…because I did too), I didn’t immediately feel a debilitating wave of anxiety wash over me. I knew that he had a donut and then 6 donut holes today and the gluten was probably making his stomach hurt. So I knew that he would be ok and he just has to wait for it to pass.
I feel so bad that I didn’t think of a food allergy or sensitivity sooner because I struggle with a dairy sensitivity, but we were pretty sure that it was anxiety all along. He does still get really anxious about exciting things, but that’s a normal kid thing. I think we have found our problem. Gluten, I’m on to you! I’m keeping my eyes on you. Or maybe off of you as we reach for the gluten-free food!